MS Care Study Results

 

Participants 

  MS Care program's flexible treatment model allowed for participation from MS patients across Washington state and four other western states.

MS Care program's flexible treatment model allowed for participation from MS patients across Washington state and four other western states.

  • Of the 171 participants randomized to either MS Care or usual care, 167 (97.7%) completed the study intervention and post-treatment outcome assessments.
  • The sample was representative of the population of adults with MS in terms of age, sex, race, ethnicity, relationship status, work status, and disease duration.
  • Although participants could enroll due to difficulty with pain, depression, or both, the majority of participants enrolled with moderate or severe pain (72%) or both pain and depression (23%); few individuals enrolled only had depression (5%).
  • Participants were offered the choice of in person or telephone care management sessions and opted to do 75% of their sessions by telephone

 

results

At the end of the treatment phase, participants in MS Care, compared to those getting usual care, had:

  • Significantly better control of their pain and depressive symptoms: 57.6% of those in MS Care had good pain and depression control, as compared to 31.7% in usual care
  • Less:
  • Pain severity
  • Pain interference
  • Depression severity
  • Disability
  • Fatigue
  • Satisfaction with their pain and depression care
  • Satisfaction with their healthcare at the MS Center and overall healthcare, despite the fact that both groups entered with existing high levels of satisfaction with care

We also found a very high rate of adherence to the MS Care intervention: 90% received 10-12 sessions of MS Care 

 

Next steps

  • We are analyzing additional outcomes, including use of medications and other treatments, as well as quality of life.
  • In March of 2017 we will finish collecting our 6-month follow up assessments to see if improvements were maintained.
  • In March and April of 2017 we will collaborate with our stakeholders to interpret the additional study findings and generate other questions to explore in our data.
  • In partnership with our stakeholders, we are working on a plan to share the study results with the MS community and implement what we learned into MS Care.
  • We are writing the scientific manuscript that will describe the study findings and will submit it to a scientific journal in the Spring of 2017.